Sally's Van - Charity Donation
Unit price/ per
We're helping Sally (Super Sally), her mum & sisters (Hayley & Leica) raise money buy a modified wheelchair van ($59,000)
With 100% of money raised by Iguana Beachwear being donated.
Sally is the daughter of my longtime best friend Alison.
On Christmas eve 2020, while Sally, her sisters and mum were heading up to the Hunter Valley for a family holiday, their 20 year old van broke down, leaving them stranded in the middle of the freeway. NRMA were wonderful and did come to their rescue, however it took several hours waiting for the van to be towed and an available wheelchair-accessible taxi to arrive to get them back home.
It turned out the motor in the old van had blown, and the cost of fixing it essentially wrote the vehicle off.
They need a new van, a modified van, one that has an electric hoist to lift Sally in her wheelchair safely and securely in and out of the van, and to help Alisons often tender-back, one that can safely transport Sally (as it is fitted with specialised wheelchair tie down restraints and seatbelts) to specialist appointments or to the hospital at a moments notice, one that can securely transport other essential equipment Sally needs, safely carry luggage for a weekend away or a family holiday with Sally & her sisters.
A Little bit about Sally.......
From 18mths Sally began to lose all the skills she had learnt so far, walking, talking and getting the hang of feeding herself, normal stuff babies/toddlers learn/do.
At 2 years of age Sally was diagnosed with Rett Syndrome, a neurological disorder affecting around 1 in 10,000 children in Australia, most of whom are girls.
Rett Syndrome took away Sally's ability to talk, walk and feed herself, making her totally dependent on her mum and sisters.
Sally has a range of issues that not only make it hard for her to feel comfortable, but also difficult for her to use alot of basic equipment eg, she can't simply use a standard wheelchair.
She has abnormal breathing, seizures, a repetitive hand movement, scoliosis and hip obliquity which can caused back and leg pain and headaches.
In 2013, to try and help the scoliosis & hip obliquity, she had spinal fusion surgery and 2 rods inserted into her spine.
Whilst this surgery provided Sally with some relief, it also meant more than ever that she must be in her own specialised wheelchair, customised to support her now more inflexible body.
If you would like to read more on Sally copy this link into your browser:
You can also donate via the Go Fund Me link